Third dose of Dad’s Granulocytes.
I enjoy the 10 minute walk between the Ronald McDonald House and the hospital. Massive houses and lovely old trees line the quiet streets of this gracefully aging neighborhood. I can’t believe the size of the homes and the fact that only one family live inside them. You would have to pack a lunch to get from one end of the house to the other.
There is a constant war against the lush green moss that grows on the rooftops, sidewalks and retaining walls – every available surface – because of the high moisture of this coastal city, but it makes for awesome jungle-like vegetation. With the canopy of trees above, carpets of thick moss at my feet and the character buildings detailed with stone and ornate wrought iron accents this is a mystical place.
Add to that the biggest, blackest squirrels I have never seen before. My walk is teeming with them as they bravely tear across my path, chatter at me from the trees and walk the tight ropes of the hydro lines above. I get the feeling the human residents of this area consider the little rodents a nuisance, but they lift my spirits. While I walk I’m wishing Nick was healthy and with me, and all we have to worry about is some pesky squirrels.
Tuesday June 1
Fourth dose of Dad’s Granulocytes. A total of eight white cell infusions for Nick. This is THE BIG DAY for Kendra and Lorelie because they have gone home to Saskatchewan. Finished cancer treatment – Wow! Bittersweet for me as I hugged them, so happy it is over for them and wishing we were leaving too. I wonder if I’ll ever see them again.
Friday June 4
The sixth donation of Dad’s Granulocytes was completed yesterday. Ten infusions for Nicholas. He has a WBC (white blood count) of 1.38 and ANC (absolute neutrophil count) of 1.03. Wonderful little healthy fighting cells running around inside his body, cleaning house! He’s been without a fever for a while now. He is mostly asleep, a fan of dark lashes spread across his pale cheeks, and it is a restful sleep, with a relaxed face and calm body. The fungal balls removed from near his lungs called Aspergillus are not propagating in the hospital lab. The doctors say they would so love to be able to study such “complete specimens.”
Nick had another little catheter inserted under skin in his thigh with a port to receive the needle for the GCSF (granulocyte colony stimulation factor) he has every day. The insertion is a little uncomfortable but only for a few seconds. The port has a life span of about ten days and removes the need for needle pokes because the medication is infused through the catheter already under his skin. Great idea.
We had to move out of the Ronald McDonald House for the yearly cleaning two-week closure. If we need it the Easter Seal House might have a room for us, but Nick is stuck in the hospital, so I’ll live with him there.
FH took Frankie home for a break and to check up on our little farm. We have stopped giving our white cells to Nick. At least he is receiving GCSF, so it feels like we are still trying something to start cell production inside his bone marrow. The doctors say there is nothing else to do but wait and hope his bone marrow kicks into gear. The White Blood Cell count is 0.23 and dropping. Our cells are dying inside of him and taking the soldiers out of the war. That’s it? Nothing more to do? I could freak out at any minute, but I don’t know if I could stop screaming once I got started.
My footsteps are muffled as I walk upon a slippery patch of moss. The black squirrels chase one another in the branches above my head.