Wednesday March 10
My cousin, who is a talented cook, had us over for a beautiful roast beef, nicely browned fat on the outside, and slices that cut with a fork. Whipped potatoes with a perfectly seasoned gravy and I couldn’t quit eating. I cook when I’m at the (Ronald McDonald) House, but I’m getting fat on the microwave crap I eat at the hospital. I gotta say that even better than the food at my cousins’ was spending time in an actual home.
Nicholas has been out of the hospital on a pass for four days in a row – heaven. FH (my husband) and I have been taught how to do the daily dressing changes on Nick’s central line (CVC). Tomorrow there might be another bone marrow biopsy to check for cancer depending on what shows up in his blood work.
I breathed a sigh of relief when FH took Frankie home to the Kootenays. It’s a struggle to get our fourteen year old working on his assigned schoolwork. But it was the same when we were at home. We have to concentrate on making some kind of “normal” home for Frankie so he can finish his school year. I get that home is difficult without Nick and I there. We are on Planet Strange.
Each day I take Nick to the oncology clinic on the main floor in the bowels of the hospital for blood work. From the front door the pediatric clinic is a long walk through crowded hallways.
Getting a bug is a huge worry when our kids have a crappy immune system. I’ve heard about children having a chance to beat the cancer, but they die from an infection.
Hmmm, crowded sick children’s hospital – where do you think the germs are hanging out?
At the Ronald McDonald House there is a cleaning routine after anyone uses a toilet, sink and shower – every time, no excuses! I clean up after Nick, and Frankie knows what to do. In the kitchen at the end of each day the dish towels and cloths are changed. The House is mostly empty right now.